NORTH TO ALASKA!
I am a Vietnam era veteran. I joined the military in July, 1967. I performed various jobs in the military, primarily I served as a 95B20, “Military Policeman”. My added skill identifier designated me as a military “Game Warden”. While working as a Game Warden at Fort Gordon, Georgia, I became involved in the testing phase of the most toxic chemical known to man, “Agent Orange”! There was no delay in the deadly chemicals attacking me. Right away, I contracted the disease of chloracne, and began to get neuropathy, therefore loosing the feeling in my feet and hands. Little did I know at that time, that the most deadly chemical known to man, agent orange, was going to set the course of the rest of my life.
In 1997,I had a heart attack on my 48th birthday, with bypass surgery and three stents required. In 1999, I got an implanted heart device. I had a heart ablation, and I was diagnosed with diabetes. Around the year 2000, I was diagnosed with kidney failure. In 2020 I came down with Fournier’s gangrene, a terrible condition that few have managed to survive. I was given a four percent chance to make it through the operation, and twelve percent chance to make it another ninety days. All due to the Agent Orange exposure and secondary chloracne disease.
In 2009, I won the very first claim for Agent Orange exposure at a military instillation inside the Continental United States, and I was granted by the VA, a one hundred percent permanent and total disability rating. In 2011, the VA granted me another one hundred percent disability rating for loss of use of two feet, Then again, another one hundred percent disability was granted for loss of use of two hands in 2016. That grant had an effective date of back to 2011. Somewhere in time along there, I was granted a one hundred percent disability for kidney failure. We won’t get into the many lesser grants such as diabetes, neuropathy, severe anxiety and depression, and so on.
My wife, Sandra, and I were high school sweethearts, and we married on 9/11/1967, while I was still in basic training. Sandra has been designated as my official VA PCAFC Caregiver, and she gets paid monthly by the VA for taking care of me.
Sometime in June, 2024, I began to think about our upcoming 57th wedding anniversary. It seemed that an Alaskan cruise was in order. I contacted my travel agent and had it all arranged. It seemed like a really good idea at the time, as I would have my caregiver by my side the entire trip, to help with my activities of daily living and dispense my medications. I might even get a few feathers in my cap for not forgetting our anniversary this year!
In July, I went a few days without wearing my leg braces. That was a mistake! The scuffing of my foot against the bottoms of my shoes put blisters on the bottoms of my feet. Having no feeling in the feet, and not being able to see the bottoms of my feet, I wasn’t aware of the destruction that was going on inside my shoes until it was too late, and I ended up with a foot ulcer on each foot.
When I realized the damage to my feet, I reported to the VA emergency room in Nashville, Tennessee. Podiatry followed up, and I was placed in the wound care clinic. There they drained, medicated, and bandaged my wounds. Again, I began to think of the upcoming cruise. At this late date, it was too late to cancel the trip. On Facebook marketplace, I had seen a small fold up scooter for sale. That dandy little red scooter seemed to be my ticket, and would save the day, so I purchased it. It was just right to take on the airplane, and would also be allowed on the ship.
I had previously told my VA podiatrist about the upcoming cruise. He was skeptical. I had an appointment with Podiatry on the day before we were to depart, on the 28th of August. I informed my doctor about the recent purchase of the scooter. He said that the trip was still “doable”, and he agreed to give Sandra enough medication and bandages to see us through the the ten day cruise. There was a final stipulation and warning;, “Stay off of your feet as much as you can”!
On August 28, 2024, Sandra, and I headed out to the Nashville, Tennessee airport. Sandra also happens to be my VA appointed PCAFC level two caregiver. We were headed out to Seattle, Washington to take a ten day Alaskan Cruise aboard the “Norwegian Sun” Cruise ship, to celebrate our 57th wedding anniversary, which just happens to be on 9/11.
We arrived at BNA, in Nashville at 5:00 AM, in plenty of time to get checked in, get through security, and board our Alaska Airlines flight with a 7:00 am departure. They were supposed to have wheelchairs waiting for us at the street curb, but guess what? No wheelchairs in sight! So we walked, pushing the two large fifty pound checked bags while carrying the other two carry on bags, which weighed about twenty pounds, and a back pack, adding another ten to twelve pounds. The thought went through my head and I was once again reminded of what the Doctor said, “Stay off of those feet as much as you can”! I understood the painful warning, loud and clear.
There were ten people in our party making the cruise. Our entire party was made up of Veterans and spouses from our veterans’ organization, the United States Veterans Alliance (USVA). One other couple, the Smiths, were also celebrating their 54th anniversary.
The line was quite long at the Alaska Airlines check in counter. We were glad to hear the words, with a nod in our direction,“NEXT! The attendant checked our luggage, and told me that I needed to remove the battery from my new scooter. I protested to no avail. Airline policy did not require the battery to be removed, but there was no time for further argument. I complied. I got down in the floor, removed the battery and placed it in the carry on bag, as instructed.
They asked for our passport and drivers license, then motioned for us to start through the long security line. We worked our way up the line to the security guard. I wear leg braces from the bottoms of my feet to just below the knee. You would have thought that I had an atom bomb tucked in those braces. I also have an implanted defibrillator, and my chest bone has been wired together with titanium wire, due to heart surgery in 1997. My body was reconstructed from my knees to just above my navel in 2020. I have no idea what kind of metal was used there, but a metal detecting wand really sounds off when it comes in contact with the metal, and it doesn’t like it at all. So it is an automatic routine, ”go sit in that chair”, “Get that cap off”. “Yep the belt too”. It is a fifteen minute detour. Also, airplanes don’t wait on disabled people!
When we finally got to the front of the security line, I was cleared. Sandra, on the other hand, was flagged. The security guard said, “Something is wrong with her paperwork, and we can’t fix it here. You need to take this piece of paper and go back to ticketing.” I protested, “but we are going to miss our flight”. They didn’t seem to care.
We ran back to ticketing. There, they were trying to load two huge dogs into transport cages, and those bad boys had made up their minds, they were NOT going to have any of it. Finally, the second dog was crated and once again we got the nod and heard the word, ”NEXT”!
There was a different attendant working the ticketing counter this time around. He tried to blame the mix up on us. He said, “Why did you show us a passport in addition to a drivers license”. I answered “because the ship requires a passport, and besides, you cleared me, and I too produced a passport and a drivers license”. Then he volunteered the fact that it was his, and the first attendant’s first day on the job. Then he directed us to go back through security. Once again, we ran toward the long security line, where finally, after the second, “time out”, in the chair, we made it through security.
Our gate was the farthest gate from the security area, we grabbed the carry on bags and the back pack and began to run. When we arrived at our departure gate, there was no airplane. The attendant said that we had missed the plane by twelve minutes. Realization set in and I realized, on that run to the departure gate, I hurt my sore feet, twice. We rested in the chairs for a while before beginning the long journey back to the ticketing counter. We were beginning to really enjoy that 57th anniversary!
Returning to the ticketing counter, I told the agent exactly what had happened. Offering no apology, he told us that 0900 in the morning would be our next available flight out to Seattle. I replied that that 0900 flight would not work for us at all, because our cruise ship was to begin boarding at 0800 in the morning. I protested and demanded to talk to supervisor. The supervisor was summoned, but he too became very defensive.
After some time spent arguing back and forth, the guy finally saw the urgency in our getting to Seattle. He looked at the flight schedule and discovered that there was another non stop to Seattle that same morning, taking off two hours behind our previously missed flight. He said that there was only one available seat on that flight, but he would call the gate to see if all of the passengers had checked in. There was a chance, two passengers had not yet checked in, and they only had seven minutes to do so.
We sat down for what seemed to be an eternity. The guy finally came over and said that check-in time was up. The only catch being that he had to wait fifteen more minutes before he could actually reissue the now vacant seats. He said that it would be the longest fifteen minutes of his life.
Again, we sat and waited, but at least there was a glimmer of hope. My mind went back to my throbbing feet, and again I heard the words, “keep off of those feet as much as you can”! There was no turning back now. I just pushed it to the back of my mind.
His voice rang out like a bugle, “the fifteen grace period is over, now I can print your boarding passes. We now need to hurry. That plane leaves the gate in eight minutes.” With that, he printed our boarding passes and called for two wheelchairs. He said to them, “I am going to close my station and go hold that plane”. Before leaving, he adamantly instructed the pushers to rush us through security. Those guys knew how to break line and elbow their way to the front of the security line. There was no way to avoid the metal detector again, and the sit down fiasco in the chair.
Putting ourselves back together and retrieving our personal items from the security trays after going through security seemed to take forever. Then, with wind blowing in our faces, those two workers ran with the wheelchairs. It was a long way to gate twelve! When we arrived at the gate, our boarding passes were checked and we were the last two to be wheeled down the ramp and into the plane. We found our seats, sat down, and the aircraft door shut. We both gave a sigh of relief, we were at last headed to Seattle! I heard the landing retract, and realized that we were airborne on the five hour flight to Seattle. Oh boy, did my feet hurt!
It was a good flight, and with a bump, the landing gear touched down five hours later in the bustling city of Seattle, Washington. We were running about two hours behind our group, who narrowly made the first flight out of Nashville.
My scooter was sitting at the aircraft door awaiting me, but I had to get down in the floor in order to replace and secure the battery, and they did have a wheelchair for Sandra. Our luggage had made it to Seattle on the first flight and had not been picked up off of the conveyor belt, so they put it in unclaimed luggage. After awhile they did find all of it and our wheelchair pushers got it to the sidewalk pick up point for the Aloft Airport Hotel shuttle van pick up, as prearranged with a phone call to the hotel upon landing. The rest of our party only got to their rooms about thirty minutes before us because of a long wait on the hotel shuttle van. We arrived at the hotel, where once again, we were all together as a group. All is well that ends well, but man, my feet hurt!
We were all exhausted by the time we got to the hotel. I think a rest and a nap was needed and taken by all. On the morning of the 29th of August we loaded up in a van for the forty five minute trip to the cruise terminal. That trip set us back three hundred dollars. The trip to the ship was uneventful. We unloaded the van and checked our luggage with the dockside porters.I once again reunited with my scooter. The ramp up to the ship was steep, but after getting my little red scooter hung up on the ramp joints a few times, I made it on to the ship. From there it was routine, Pictures, check in and so on.
So, we boarded the ship, our rooms were not ready yet, so we decided to go eat. We met up with the Smiths at the buffet and sat there for a while until the announcement was made that our rooms were ready. Once the rooms were ready, we proceeded to the 8th deck and entered our rooms where we found our luggage waiting on us. I laid down and rested for a short while because I really didn’t feel good.
At the dinner table I ordered, but I didn’t really feel like eating, and I really just wanted to go back to the stateroom and lay down. I don’t think I was very good company at the dinner table and I didn’t have a whole lot to say. Sandra and I excused ourselves after a short while, and went back to the state room. I laid down on the bed. I got my feet in a comfortable position and I didn’t really want to move. My thinking at the time was, I thought that I must be awfully tired and exhausted and just needed some rest and catching up, then I would be just fine.
So we boarded the ship, our rooms were not ready yet so we decided to go eat. We met up with the Smiths at the buffet and sat there for a while until the announcement was made that our rooms were ready. Once the rooms were ready, we proceeded to the 8th deck and entered our rooms where we found our luggage waiting on us. I laid down and rested for a short while because I really didn’t feel good.
At the dinner table I ordered but, I didn’t really feel like eating and I really just wanted to go back to the stateroom and lay down. I don’t think I was very good company at the dinner table and I didn’t have a whole lot to say. Sandra and I excused ourselves and went back to the state room. I laid down on the bed, got my feet in a comfortable position and didn’t really want to move. My thinking at the time was that I thought that I must be awfully tired and exhausted.
On the third morning of the cruise we got up early, We were in Juneau Alaska, We had bought a Shore Excursion train ride. We had to be at theTrain station at 8:00 in the morning. It was drizzling rain and my scooter really worked out well. We rode off the ship down towards the end of the dock where the train awaited us. It was drizzling rain, but they had a place that we could back in under with our scooters to keep from getting soaked. I was about to freeze, and had no Source of heat that I could use to warm up, actually I had gotten the chills. After about a 30 minute wait under the shed they called, “All aboard” and we boarded the train Don, Smith, John, and I were lifted, scooter and all and placed on the train by the train’s handicap lift. With a bump the train started the steep climb up the mountain side. The track was a narrow gauge track, having been built back in the Gold rush days. That being said, the train was swaying back and forth wildly. I couldn’t believe the pressure that the swaying was putting on my feet. It was nagging and never ending. There was no getting away from it, and no relief, because the entire train was rocking back and forth. So up the mountain we went, as the tour guide was constantly narrating as we passed many scenic areas of Interest. I couldn’t pay attention to what was being said, because my feet were throbbing and hurt so bad. It was never ending. Just back and forth, back and forth back and forth. After 2 hours, at the top of the mountain, the train did a Switchback turn around, and we started our descent back down the mountain for another two hour ride.
Our scooters were unloaded at the train station. The rain had become a fine mist, but it seemed very cold to me. The scooter tide to the dock was about a quarter mile treck. Don, John, and I rode the scooters, while Sandra, Wanda, and Marlis walked. The pavement on the dock was wet and slick. The gang plank was very steep. Crew members had to actually lend a hand, and push the scooters back up the steep ramp. I realized that I was sick. My feet were throbbing, and I just wanted to get to my stateroom, lay down, rest my feet, cover up, and get warmed up.
I don’t think Sandra and I went up to the 11th floor to eat that afternoon we just launched in the bunk I stayed covered up I had her wrap my feet I got comfortable and I didn’t dare move I don’t know how many hours I slept but it was a long while we decided to skip the dinner, II do seem to remember attending a comedy show but shortly after I return to my state room hit the sack covered up my feet and went back to sleep for a prolonged period of time because that was the only way I could get comfortable and relatively painful free.
The next day we didn’t eat a whole lot. I think we ate the buffet and we had skipped breakfast altogether. That evening we got a call from Don and Wanda, they asked us to attend dinner with them in the main dining room. I didn’t order much. I didn’t want or need any of it. The only thing I can remember eating was the strawberry ice cream. I didn’t make good conversation. I didn’t feel good. My feet were pounding. My scooter was moved some distance away by the ship’s dining personnel,so I had to walk quite a ways in order to retrieve it when I got ready to head back to the room. By that time Don and Wanda had realized that something was really not right with me. They said I didn’t say anything, and I had an ashen color that was really pale. They knew that I was sicker than I was letting on. Sandra and I left the dinner table early. Don and Wanda, knowing that I was very sick, went looking for the ship’s doctor. In truth I was so sick that I didn’t know how sick I actually was. I had done all that I could do, and I had no plan except to stay in bed in the stateroom, and keep the reet covered up and warm.
Don And Wanda did find the ship’s doctor, and the infirmary that evening. However they were informed that the infirmary was closed and would not open again until the next morning at that point they called Sandra. After some discussion I did agree to go to the infirmary and see the doctor the next morning, however when the time came, I couldn’t get out of the bed. I tried to no avail Sandra called the Infirmary and told them they would have to send someone up and get me because I couldn’t get out of bed. They told her that they would be there to get me in ten minutes with a wheelchair.
They were very prompt, and on time. They managed to push the wheelchair to the elevators and into the Infirmary. I was very surprised to find that they had not only a doctor but a very extensive medical staff, many beds, and a lot of the equipment that you would expect to find in a land base hospital emergency room. Everyone was very clean and neat. Everyone seemed professional and knew their job. They drew blood, they took my temperature, they took my blood pressure, they weighed me and they put me into a hospital bed. They announced that I had a 102.2 temperature and they expected to find an infection somewhere. An IV drip was started in order to bring down the high temperature first thing. Blood samples were drawn and sent to their onboard lab. Before long it was determined by the blood sample lab results, that there was indeed a bad infection somewhere. When the doctor asked about my bandaged feet, and un bandaged those bleeding feet, there was no more mystery about the location of the infection. The feet were very angry looking with red streaks running from the toes up the ankles, and the feet were awful warm to the touch.
The IV drip did manage to knock out the fever Fairly quickly. Next, the Doctor started an IV drip of antibiotics. Due to my previously diagnosed kidney failure, they could only give me the antibiotics slowly, and for only one hour at a time, every six hours I would take another round of antibiotics intravenously, then they would wheelchair me back to my stateroom for another period of five hours hours. I Could only spend that five hour period curled up in the bed with my feet covered, I did not dare move because of the pain. There were four of these intravenous drip antibiotic sessions in total. Twenty four hours of treatment in all. The Doctor had to proceed at a slow pace because of my previously diagnosed kidney failure. The only other possible intervention at their disposal was to keep my feet wrapped and try to control the profuse bleeding.
I had lost all track of day and night, and of the days themselves, but on the day after the antibiotic treatments had begun, and were finally completed, the ship’s Doctor came to me and said that they had done all that they were capable of doing for me, given their limited abilities. He suggested and even insisted that I get off at the next port of call which would be Sidka Alaska. The Doctor said that he could have an ambulance waiting for me on the dock for transport to the Sitka Land-Based Regional Hospital. I had little choice but to agree, as the doctor told me that I stood a real good chance of losing one foot and possibly both feet if I didn’t get proper treatment. The Doctor was pretty adamant and told me that my condition had become life threatening. He left little room for discussion.
Sandra had been instructed to pack up all of our belongings. Our luggage would be picked up by the Port Authority and held for us until a disposition had been made as to where Sandra was going to stay One last time they came and loaded me up in a wheelchair. They wheeled me down the ships long always to the exit ramp. We disembarked on to the Sitka Alaska dock. Indeed there was an ambulance sitting there, lights flashing, waiting for me. They lifted me from the wheelchair and transferred me to a gurney, then I was loaded into the back Of the ambulance and Sandra was instructed sit up front. When the doors closed, we began the trip to the land-based hospital.
Upon Arriving underneath the canopy of the Sitca Alaska Regional Hospital My gurney was unloaded by the ambulance personnel. I was Wheeled to the glass double door entrance leading into the hospital. I was being pulled backwards so I could see what was behind. There was a gentleman in a suit going out the exit door as we were coming in the entrance Door. We passed each other. All of a sudden the stranger stopped and turned around. He then motioned to the ambulance personnel to hold up and he walked over to the foot of my gurney and began to unwrap my feet. He then, in a confident voice, said, ”I smell gangrene”!
After fully removing the bandages, he announced that he was a Podiatrist, who only worked in that hospital two days a month. He said, “I should not even be here today, I am on my way to catch a flight out of here and go to another location, but I can’t leave with your feet in that condition if you are allowed to get on another airplane and put that kind of infection under pressure you won’t live to see the doors open. I will cancel my flight and do what needs to be done for you here.
I was then wheeled into a room where they drew some blood, and performed many tests. The general feeling was of urgency and everybody seemed to be in a hurry. After a short amount of time the podiatrist, whom I had met at the entrance, came into my room and told me that they were going to have to do some amount of amputation on both of my feet in order to get rid of the gangrene. His question to me was, “how much have you had to eat today”? I answered, “only three or four Cheetos out of that bag over there in the last few days. He said, “that is too much”!
Another doctor entered my room and also asked when I had eaten last He also said that my three or four Cheetos were too much, considering that they needed to use anesthesia. The podiatrist scraped my feet with a blunt instrument, and he got no reaction from me. He concluded that both feet had no feeling left in them. Then he said that they could perform the operation without anesthesia. He then said, “I have but one question for you, “do you want to be asleep or do you want to be awake”? My answer was that I would rather sleep through it. He said, “we will take a chance on the anesthesia, considering the small amount that you have had to eat, but we must get this show on the road”, “we only have minutes”, “not hours”. AT that time the anesthesiologist told me that he would have me asleep within three minutes. A needle was introduced into my forearm, and I was off to la la land in seconds!
When I awoke from the operation, I discovered that the great toe on my right foot had been amputated. Also a slice of my foot from the base of the great toe, extending toward the heel was also missing. The Doctor said that he had started the operation, but he could not finish it. He advised that I fly back to the VA hospital in Nashville for further treatment. He also told me that the left foot needed partial amputation, and he would have taken care of that at the same time, but he didn’t want to start two fires at the same time.
The Podiatrist was sitting at the foot of my bed when I awoke from the anesthesia. He had already researched Alaska Airlines flight schedules, and he had chosen the connecting flights that would get me to the Nashville VA hospital in nine hours and twenty minutes. He recommended that I schedule those flights because he had left a flap that could be used and seen in place offer the open wound on my right foot, but it was expected to only have a useful life of about ten hours. We scheduled the flights and he said that he would be back early in the morning to re wrap my feet.
Early the next morning my feet were re wrapped but the bleeding could not be stopped. I was taken down to see a general surgeon who spent more than an hour cauterizing and wrapping my right foot. We all knew that my flight time was fast approaching. I did not want to miss that flight, and we were already packed up and ready to go, but the doctors said that the airline security would never let me board the aircraft with the foot bleeding like that. Finally the surgeon said that he had done all that he could do, but he suspected that that foot was going to get awful mushy because of the bleeding.
Before the Alaska cruise, I had purchased a small scooter. It was airline approved and I also was able to use it aboard ship. The Sitka hospital called a shuttle service to take us to the airport from the hospital. When we arrived at the airport I rode my scooter to the ticket counter because I could not walk. The ticket agent informed us that we could not board the aircraft because I had a scooter, and that they should have already checked the scooter in as baggage. Apparently there was a cut off time for checking scooters as checked baggage. The agent said that I was not going to be allowed to board the aircraft.
I told the agent that the scooter did not have to board with us, that it could fly on a later flight. She said, “no, we can’t do that”. Next I said that I would leave the scooter behind and donate it to the hospital. She said, “no,” you can’t do that either”. I said, “Mam, if I miss this flight, I am going to lose my foot”!
At that point I think she saw blood coming from my shoe. Abruptly, she said, get the battery off of that scooter, I will get you a wheelchair and go hold the airplane. Her last minute gesture probably saved my foot. With a feeling of relief, we were allowed to board the aircraft.
Watch for future periodic additions to this true story. As I get time to work on it, I will also proof read and edit the above draft.